Childhood Leukemia
Stem Cell Transplantation
Blood & Marrow Transplant Information Network (BMT InfoNet)
BMT InfoNet supplies high-quality, easy-to-understand information about bone marrow, peripheral blood stem cell, and cord blood transplants.
Children’s Organ Transplant Association (COTA)
COTA provides fundraising assistance to families facing a life-saving organ, stem cell, or bone marrow transplant. Funds raised in a COTA campaign can be used for any expenses related to the transplant.
This organization provides fundraising assistance and donor awareness materials to transplant patients.
Be the Match (formerly National Marrow Donor Program)
This group helps people find bone marrow donors and cord blood units to get the best match; supports patients through the entire transplant process; and offers free DVDs, CDs, workbooks, and written education materials in multiple languages.
National Bone Marrow Transplant Link
This organization helps patients and families through the process of bone marrow/stem cell transplant, offers one-on-one phone support and a phone support group, a searchable online library, free online information, or a hard copy of information for a small charge.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups