Childhood Leukemia
Chapter 11: Hospitalization
“Every day is a journey, and the journey itself is home.”
THERE ARE FEW THINGS in life more uncomfortable than rising from a lumpy pull-out couch to face another day of your child’s hospitalization for leukemia. Hospitals are noisy bureaucracies that run on a time schedule all their own. Staff members wake children in the middle of the night to draw blood or check temperature, pulse, and blood pressure. Groups of doctors at all levels of training drop in unannounced.
For a child, being hospitalized means being separated from parents, brothers, sisters, friends, classmates, pets, and the comfort and familiarity of home. A child’s hospitalization can rob both parent and child of a sense of control, leaving them feeling helpless. But with a little ingenuity, you can make the most of the facilities, liven up the atmosphere, and even have some fun on the good days.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups