Childhood Leukemia
Chapter 21: Sources of Support
“Be strong, be fearless, be beautiful. And believe that anything is possible when you have the right people there to support you.”
THE DIAGNOSIS OF CANCER CAN BE a frightening and isolating experience. Every parent of a child with cancer has a story to tell of lost or strained relationships. Yet we are social creatures, reliant on a web of support from family, friends, neighbors, and religious communities. We need the presence of people who not only care for us, but who sincerely try to understand what we are feeling.
Members of families struck by childhood cancer—parents, the child with cancer, and siblings—often turn to hospital social workers, support groups, therapists, clergy, and camps for support. This chapter offers information about these resources, which can help families regain a sense of control over their lives and find wonderful new friends who understand what they are going through.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups