Childhood Leukemia
Educational and Legal Support
Job Accommodation Network (JAN)
JAN facilitates the employment and retention of workers with disabilities by providing employers, people with disabilities, their family members, and other interested parties with information about job accommodations, entrepreneurship, and related subjects.
Learning Disabilities Association of America (LDA)
LDA serves parents, professionals, and individuals with learning disabilities; has local chapters; and provides educational materials.
National Center for Learning Disabilities
This center offers extensive resources, referral services, educational programs about learning disabilities, and an online community for young adults with learning disabilities. It also promotes public awareness and advocates for effective legislation to help people with learning disabilities.
Center for Parent Information and Resources (CPIR)
The CPIR provides resources for parents of children with disabilities, an interactive map of parent training and information centers in the United States, as well as information about parent technical assistance centers.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups