Childhood Leukemia
Hospice and Bereavement (Australia)
Bear Cottage
The Bear Cottage Children’s Hospice is located near Sydney. It offers both respite and palliative care to children and young people with life-limiting illnesses and their families.
The Compassionate Friends New South Wales
Compassionate Friends assists families in the positive resolution of grief following the death of a child and provides information to help others be supportive.
Hummingbird House
http://hummingbirdhouse.org.au
Queensland’s only children’s hospice is in a north suburb of Brisbane. It provides respite and palliative care to children and teens with life-limiting illness, with a family-centered approach.
Palliative Care Australia (PCA)
PCA provides information, resources, and referrals.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups