Childhood Brain and Spinal Cord Tumors
Involving siblings
Whether your child is dying at home or in the hospital, any siblings should be included in the family response. Being part of things and having jobs to do help brothers and sisters remain involved, contributing members of the family. Young children can answer the door, go on errands, or make tapes or CDs to play for the sibling. Older children can help with meals, stay with the ill child to give parents a break, answer the phone, or help make funeral arrangements. These jobs should not be “make-work”—children should truly be helping. This not only allows them to clarify their role in the family, it helps them to prepare for the death, as well as have an opportunity to say good-bye.
We gave our children free rein to pick out the clothes that Jesse would be buried in. They made very thoughtful choices: her favorite, very comfortable pajamas with little tea cups on them, and her teddy bear.
The Compassionate Friends (see Appendix B, Resource Organizations) has dozens of resources to help all members of the family.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites