Childhood Brain and Spinal Cord Tumors
Chapter 22: End of Treatment and Beyond
The best formula for longevity: Have a chronic disease, and cure it.
— Oliver Wendell Holmes
THE LAST DAY OF TREATMENT is a time for both celebration and fear. Most families are thrilled that the days of pills and procedures have ended, but some fear a future without treatments to keep the disease away. Concerns about relapse are an almost universal parental response at the end of treatment; but for many families, the months and years roll by without recurrence of the tumor.
However, most children and teens have lingering or permanent effects from treatment for a brain or spinal cord tumor. This chapter covers the emotional and physical aspects of ending treatment, the need for excellent medical follow-up, and employment and health insurance issues.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites