Childhood Brain and Spinal Cord Tumors
Support groups for children with cancer
Many pediatric hospitals have ongoing support groups for children with cancer. Often these groups are run by experienced pediatric social workers who know how to balance having fun with sharing feelings. For many children, these groups are the only place where they feel completely accepted, and where most of the other kids are bald and have to take lots of medicine. The group is a place where children or adolescents can say how they really feel, without worrying that they are causing their parents more pain. Many children form wonderful and lasting friendships in peer groups.
All four of my kids have been going to the support groups for over 7 years now. We have one group for the kids with cancer, which is run by a social worker. The siblings group is run by a woman who specializes in early childhood development. Both groups do a lot of art therapy, relaxation therapy, playing, and talking. They meet twice a month, and I will continue to take my children until they ask to stop. I think it has really helped all of them. We also have two teen nights out a year. All of the teenagers with cancer get together for an activity such as watching a hockey game or basketball game, or going bowling, to the movies, or out for pizza. They also see each other at our local camp for children surviving cancer (Camp Watcha-Wanna-Do) each year.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites