Childhood Brain and Spinal Cord Tumors
Hospital resource rooms
Hospital resource rooms are now becoming more widely available, and they are designed to help patients and their families find information—electronic or print—about specific conditions.
I think I first learned from a medical librarian about www.nih.gov and Medline, where you can find current research on chemotherapy and other treatments. If your local hospital is a teaching facility, they often have all the major medical journals, so we were able to get full-text versions of papers that we needed. Until we had our own home access to the Internet, most of our research was done through our local hospital’s medical library.
Patient resource rooms are wonderful places. They usually have basic information on your child’s illness, listings of agencies and cancer organizations, online access, and a person available to answer questions and help get you started if you’re unfamiliar with doing Internet searches. It should be one of the first places families are directed to.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites