Childhood Brain and Spinal Cord Tumors
Individual Health Care Plan (IHCP)
If your child has any medical needs that must be managed at school (e.g., management of seizures, headaches, shunts, or medication), your child’s doctor should write a letter to the principal with written orders for care. The school nurse will develop an IHCP to ensure that your child’s medical needs are appropriately managed at school. The IHCP is incorporated into either an IEP or Section 504 Plan, and it includes a brief medical history, medications and side effects, student health goals, clear descriptions of health services that will be provided by the school, and contact numbers for emergencies. Parents and school personnel must sign the plan before it is implemented, and it should be updated every year.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites