Childhood Leukemia
How to Use This Book
While conducting research for this book, I was repeatedly told by parents to “write the truth.” Because the “truth” varies for each person, more than 170 parents, children with leukemia, and their siblings share portions of their experiences. This book is full of these snapshots in time, some of which may be hard to read, especially by families of newly diagnosed children. Here are suggestions for positive ways to use the information contained in this book:
- Consider reading only the sections that apply to the present or the immediate future.
- Realize that only a fraction of the problems that parents describe will affect your child. Every child is different; each one sails smoothly through some portions of treatment but encounters difficulties during others.
- Take any concerns or questions that arise to your child’s oncologist and/or nurse practitioner for answers. The more you learn, the better you can advocate for your child.
- Share this book with family and friends. Usually, they desperately want to help and just don’t know how. This book not only explains the disease and treatments but also offers dozens of concrete suggestions for helpful things family and friends can do.
Best wishes for a smooth journey through treatment and a bright future for your entire family.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. Overview of Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- 4. Acute Myeloid Leukemia
- 5. Juvenile Myelomonocytic Leukemia
- 6. Chronic Myelogenous Leukemia
- 7. Telling Your Child and Others
- 8. Choosing a Treatment
- 9. Coping with Procedures
- 10. Forming a Partnership with the Medical Team
- 11. Hospitalization
- 12. Central Venous Catheters
- 13. Chemotherapy and Other Medications
- 14. Common Side Effects of Treatment
- 15. Radiation Therapy
- 16. Stem Cell Transplantation
- 17. Siblings
- 18. Family and Friends
- 19. Communication and Behavior
- 20. School
- 21. Sources of Support
- 22. Nutrition
- 23. Insurance, Record-keeping, and Financial Assistance
- 24. End of Treatment and Beyond
- 25. Relapse
- 26. Death and Bereavement
- Appendix A. Blood Tests and What They Mean
- Appendix B. Resource Organizations
- Appendix C. Books, Websites, and Support Groups