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Beckwith-Wiedemann Syndrome

Beckwith-Wiedemann syndrome is a congenital growth disorder that cause large body size, large organs and other symptoms. It can increase a child's risk of certain childhood cancers including Wilms’ tumor and hepatoblastoma.

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Latest Beckwith-Wiedemann Syndrome grants

Cancer Risk and Incidence in Beckwith-Wiedemann Syndrome
Jennifer Kalish, MD/PhD, Principal Investigator
Children’s Hospital of Philadelphia
Epidemiology Grants, Awarded 2019
Dissecting the Mechanism of Overgrowth and Tumorigenesis in Beckwith-Wiedemann Syndrome
Jennifer Kalish, MD, PhD, Principal Investigator
University of Pennsylvania
Young Investigator Grants, Awarded 2013

Beckwith-Wiedemann Syndrome Heroes

Emma Boelk
Danielle Saucedo

Latest Beckwith-Wiedemann Syndrome blog posts

Discovering More Ways to Identify Kids with Beckwith-Wiedemann Syndrome
The National Institutes of Health define rare diseases as conditions that affect fewer than 200,000 people. But for families facing one of these diseases, like Beckwith-Wiedemann Syndrome (BWS), these diagnoses don’t feel rare. BWS affects... more
Quarterly Childhood Cancer Research Update: Spring 2021
As the Alex’s Lemonade Stand Foundation (ALSF) Director of Science, I work to evaluate our funded research projects to track progress and find gaps in funding so that we can direct more research dollars to the largest areas of need, and to... more
How Tissue Donation is Helping Childhood Cancer Research
When Lilly faced surgery after relapsing, her family made the decision to donate extra tumor tissue to research instead of throwing it away. 

“We hope that Lilly’s neuroblastoma tumor can be some small part of helping other children who... more
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Featured Hero

Arianna Hines

Arianna is a firecracker. She is loving, empathetic, and bold. At a mere 13 months old, Arianna was diagnosed with neuroblastoma and began intensive treatment with some life-threatening complications. Today she is NED and her family raises money for ALSF.
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