Childhood Cancer

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All blog posts tagged with "Beckwith-Wiedemann Syndrome"

April 7, 2022

The National Institutes of Health define rare diseases as conditions that affect fewer than 200,000 people. But for families facing one of these diseases, like... more

March 25, 2021

As the Alex’s Lemonade Stand Foundation (ALSF) Director of Science, I work to evaluate our funded research projects to track progress and find gaps in funding so that we can direct more research dollars to the largest areas of need, and... more

March 4, 2020

When Lilly faced surgery after relapsing, her family made the decision to donate extra tumor tissue to research instead of throwing it away. 

“We hope that Lilly’s... more

September 12, 2019

Every day, everywhere, children are diagnosed with cancer. Right now, children are in hospitals receiving frontline treatment following a diagnosis. Other children are beginning a clinical trial following a relapse. Still others face... more

July 3, 2019

Last year, we shared the story of 14-year-old Eden Green, who loves to take photos and dance. Eden was in treatment for a form of childhood cancer so rare, that doctors did not have a clinical name for it. After 4 months of... more

December 17, 2018

by Trish Adkins

For Eden, the trouble began when she was 10 years old. The trouble had a name: pain. It seemed normal at first—maybe a side effect from dancing or growing. But then it never went away and then, suddenly... more

December 14, 2018

Children with certain types of hard-to-treat childhood cancers just got another huge dose of hope. Last week, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a drug called... more

December 3, 2018

by Adam Paris

Eden is a 13 year old who loves to shoot photos and smile for her own snapshots. After being unable to walk or practice her favorite activity, dancing, for nearly a year, she was... more

November 29, 2018

by Trish Adkins

In September, Alex’s Lemonade Stand Foundation (ALSF) called over 90 top scientists, pediatric oncologists and researchers from around the world to gather in Philadelphia to discuss the big question:... more

October 16, 2018

Alex’s Lemonade Stand Foundation (ALSF) has declared a war on childhood cancer.

Every day of... more

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