Childhood Brain and Spinal Cord Tumors
Choosing a hospital
At diagnosis, you have the option to choose where you would like your child to be treated. Parents can obtain a free referral to an accredited center from either the Pediatric Brain Tumor Consortium (PBTC) or the Children’s Oncology Group (COG).
The PBTC is a multidisciplinary cooperative research organization devoted to the study of tumor biology and new therapies for childhood brain and spinal cord tumors. Contact information is available at www.pbtc.org/public/inst_contact_info.htm. Member institutions are:
- Children’s Hospital Los Angeles (California)
- Children’s National Medical Center (Washington, DC)
- Children’s Memorial Hospital (Chicago)
- Cincinnati Children’s Hospital Medical Center (Ohio)
- Duke University (North Carolina)
- Lucile Packard Children’s Hospital Stanford (California)
- Memorial Sloan Kettering Cancer Center (New York)
- National Cancer Institute (Maryland)
- St. Jude Children’s Research Hospital (Tennessee)
- Texas Children’s Cancer Center
- University of Pittsburgh (Pennsylvania)
The COG is a consortium of more than 200 hospitals in North America, Australia, New Zealand, and Europe that treat children with cancer. Contact information is:
222 E. Huntington Drive, Suite 100
Monrovia, CA 91016
(626) 447-0064
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites