Childhood Brain and Spinal Cord Tumors
What kids really eat
This chapter has listed ideas for increasing calories and making food more appealing. It also described the wild cravings kids get while taking chemotherapy, usually for foods that are spicy, fatty, salty, or all three. What follows are accounts of what several kids really ate while on chemotherapy. You’ll notice how varied the list is, so experiment to see what your child finds palatable. Remember that children’s tastes and aversions may change throughout treatment.
Judd craved chicken chow mein and fried rice takeout from a Chinese restaurant. He also loved Spaghetti-Os® and hot dogs.
I let Preston eat whatever tasted good to him, which was usually lots of potatoes and eggs. He liked spicy food (especially Mexican) while on prednisone.
Katy typically only ate one food for days or weeks at a stretch. One time, she ate pesto sauce (made from olive oil, garlic, Parmesan cheese, and basil leaves) on pasta for every meal for weeks. She also went through a spicy barbecue sauce phase, in which she wouldn’t eat any food unless it was completely immersed in sauce. She ate no fruits, vegetables (except potatoes), or meat for the entire period of treatment. She ate mostly cereal and beans when she was feeling well, and mostly puréed baby food when she was really sick.
In the beginning, when Meagan lost so much weight, we snuck Polycose® (a powdered nutritional supplement) into everything. She finally got stuck on cans of mixed nuts. They are high calorie and were instrumental in putting back on the weight. She also craved capers and would eat them by the tablespoonful.
All Brent asks for are “peanut butter and jelly sandwiches, cut in fours, no crusts, with Fritos®.” The only fruit he has eaten for 3 years is an occasional banana, and he eats no vegetables. He always ate everything before his diagnosis at age 6.
The doctor told me to keep Kim on a low-salt, low-folic-acid diet. She wouldn’t eat anything, so he eventually said he didn’t care what she ate, as long as she ate. She liked Spaghetti-Os®, Chick-fil-A® nuggets, Chick-fil-A® soup, and McDonald’s® sausage and pancakes.
All Carl ate was dry cereal, dry waffles, oatmeal, and bacon. He ate no other meat or vegetables throughout treatment, but did drink milk. I thought that he would never be healthy, but he’s 15 now (diagnosed when 2), eats little junk food, never gets sick, and looks great.
While Shawn was on prednisone, I felt like I could never get out of the kitchen because he ate nonstop. The rest of the time he ate almost nothing. He survived on bagels, dry cereal, french fries, popcorn, and burritos.
John (14 months old) craved creamed corn and pork and beans. I would just sit him on a potty chair at the table and let him eat, and it would go in one end and out the other. When on prednisone, he would sit at the table almost all day. He also drank a gallon of apple juice a day. He rarely eats meat to this day (2 years off treatment).
On prednisone, Rachel ate only hot dogs, bologna, scrambled eggs with cheese, and potato chips. She would eat until she literally threw up. Now, 2 years off treatment, she is gradually expanding her repertoire. She only drinks milk (no water, juice, or soda), eats no sweets, and prefers all salty foods. I really have no idea whether it is learned behavior or a result of the cancer treatment.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites