Childhood Brain and Spinal Cord Tumors
Who needs radiation treatment?
Your child’s doctor will recommend radiation treatment based on your child’s type and location of tumor. Radiation is used for slow-growing tumors that cannot be reduced in size by surgery because of their location and for tumors that continue to grow despite chemotherapy. Fast-growing tumors usually need radiation in conjunction with surgery and chemotherapy.
Childhood brain and spinal cord tumors that usually respond to radiation include high-grade gliomas, medulloblastomas, ependymomas, germinomas, and some low-grade astrocytomas. Although radiation to the brain or spinal cord can cause long-term complications, it is an important part of successful treatment for many types of brain and spinal cord tumors. Because of the greater risk of long-term complications in younger children, radiation treatments are delayed until the child reaches the age of 3 by using surgery or chemotherapy whenever possible.
My daughter Ayla had maximum craniospinal radiation the day after she turned 3. Prior to that she had a 50% resection of a brainstem PNET and the highest dose of chemo. While taking chemo, her cancer spread to several locations throughout her midbrain. We were told that she had a 10% chance to live. We chose radiation as a last recourse and it is my belief that this was what “zapped” that cancer! She is doing great now and even attended school full time a few weeks after completing the radiation. I know that every kid is different but there are many successes from radiation, so it should not be discounted. I also know that in the future she may have some cognitive problems, but at least we have her.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites