Childhood Brain and Spinal Cord Tumors
Bed wetting
Bed wetting can be a very upsetting side effect of cancer treatment. Some drugs increase thirst and others disrupt normal sleep patterns, both of which make bed wetting more likely. Receiving intravenous (IV) fluids at night can also cause bed wetting. When the bed wetting is caused by drugs or IVs, time will cure the problem. Once the drugs or extra fluids are no longer needed, the bed wetting will stop.
There are also psychological reasons for bed wetting during treatment. The trauma of treatment for brain and spinal cord tumors causes many children to regress to earlier behaviors such as thumb sucking, baby talk, temper tantrums, and bed wetting. Punishment for these behaviors only adds to the child’s distress and rarely solves the problem. Following are parents’ suggestions:
- Adopt an attitude that lets your child know bed wetting is “no big deal.” There should be no shaming or punishment.
- For younger children, you can use disposable, absorbent underwear.
- Put down a plastic liner covered by fitted and flat sheets, then put another plastic liner with a fitted and flat sheet on top. During the night, simply pull off the wet top sheets and plastic and there are fresh sheets below.
- Keep a pile of extra-large or beach towels next to the bed. Cover the wet spot with towels and save the bed change for the morning.
- Give the last drink 2 hours before bedtime so your child can go to the bathroom right before bed.
- If your child is extremely distressed by bed wetting, ask if he wants you to set the alarm for the middle of the night so he can get up and go to the bathroom.
- Change sleeping arrangements.
During treatment, my daughter had nightmares and frequent bed wetting. I felt if she could sleep through the night, the bed wetting might stop. I told her she could sleep with me during that round of chemo, but that after that she would move back into her own bed. It calmed her to sleep with me. The nightmares and bed wetting decreased, and she moved back into her own bed without complaint when the time came.
- Give extra love and reassurance.
My teenaged son wet the bed whenever he was given antinausea medicine prior to high doses of chemotherapy. He was so embarrassed. I stayed with him every night at the hospital. He was so groggy that even if he woke up in time, I had to help him out of bed and support him while he stood, half asleep, to use the urinal.
When my daughter started bed wetting, I didn’t think it was the drugs. I thought long and hard about any additional worries that she might have, and I realized that because her dad had emotionally withdrawn from her during her illness, she might be worried that I would do the same. So I told her one night, “You know, I just realized that every day I tell you how much I love you. But I’ve never told you that no matter how hard life gets and no matter how mad we get at each other, I will always love you. I love you now as a child, I will love you as a teenager, and I will love you when you are all grown up.” She started to sob and hugged and hugged me. She has never wet the bed again.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites