Childhood Brain and Spinal Cord Tumors
Chapter 16: Family and Friends
Shared joy is double joy, shared sorrow is half sorrow.
— Swedish proverb
THE INTERACTIONS BETWEEN the parents of a child with cancer and their family members, and friends are complex. Potential exists for loving support and generous help, as well as for bitter disappointment and disputes. The diagnosis of a brain or spinal cord tumor creates a ripple effect, first touching the immediate family, then extended family, friends, coworkers, schoolmates, church/synagogue/mosque members, and, sometimes, the entire community.
This chapter begins with how family life needs to be restructured to cope with treatment. It then provides scores of ideas for helpful things extended family members and friends can do to support the family of a child with a brain or spinal cord tumor during this difficult time. To prevent possible misunderstandings, parents of children with cancer also share their thoughts about things that are not helpful.
Table of Contents
All Guides- Introduction
- 1. Diagnosis
- 2. The Brain and Spinal Cord
- 3. Types of Tumors
- 4. Telling Your Child and Others
- 5. Choosing a Treatment
- 6. Coping with Procedures
- 7. Forming a Partnership with the Treatment Team
- 8. Hospitalization
- 9. Venous Catheters
- 10. Surgery
- 11. Chemotherapy
- 12. Common Side Effects of Chemotherapy
- 13. Radiation Therapy
- 14. Peripheral Blood Stem Cell Transplantation
- 15. Siblings
- 16. Family and Friends
- 17. Communication and Behavior
- 18. School
- 19. Sources of Support
- 20. Nutrition
- 21. Medical and Financial Record-keeping
- 22. End of Treatment and Beyond
- 23. Recurrence
- 24. Death and Bereavement
- 25. Looking Forward
- Appendix A. Blood Tests and What They Mean
- Appendix C. Books and Websites