The Childhood Cancer Blog
The Childhood Cancer Blog
by Eli Talley, ALSF
When I was 4 years old in August 2005, I was diagnosed with stage IV neuroblastoma. Thirteen years later, I’m still fighting every day and I don’t intend on stopping any time soon.
Since I was so young at diagnosis, I did not really know what was going on. All I knew was that I was going to the hospital so the doctors could look at me and figure out why my leg was hurting. After performing tons of tests and taking lots of blood, they told me that I was sick and had something called cancer. They also said that they were going to do everything they could... Read More
by Trish Adkins, ALSF staff writer and Hero Mom
Mothers of childhood cancer heroes learn how to do all sorts of things they never thought they would have to do: flush ports, sleep in chairs at the hospital, search for clinical trials, manage pain, entertain children in clinic waiting rooms and put on a brave face when their child is diagnosed.
When my daughter was diagnosed with a brain tumor at 14 months old, I was just figuring out how to be mother. Immediately, everything changed. I learned that nothing was guaranteed, except that my love for my daughter (and later, her... Read More
This is Sullivan.
by Jen Butler, Hero Mom
My son Sullivan is a smart, kind, and strong 5th grader.
Until November 2016, Sullivan's health was fine. Then, he was diagnosed with brain and spine cancer. As a parent, it was one of my biggest fears come true.
Sullivan bravely underwent multiple surgeries to partially remove the main tumor and release the pressure on his brain. Sullivan's tumor removal surgery resulted in Posterior Fossa Syndrome which affected his vision, speech and ability to walk.... Read More
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