Mary was 4 years old when she was diagnosed with a rare, deadly brain tumor called diffuse intrinsic pontine glioma (DIPG). This diagnosis comes with many things — fear, a poor prognosis and a loss of hope. Mary’s doctors told the family about a clinical trial at Lucile Packard Children's Hospital Stanford. The trial, funded in part by ALSF, uses CAR-T immunotherapy to target the tumor. Mary enrolled and her family began making monthly visits to Stanford, a thousand miles away from their home in Colorado. ALSF supported the family’s travel expenses through the Travel For Care program during Mary's fight.
In March 2024, Mary sadly passed away.
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Information provided by Kristin, Mary's mom
Updated March 2024