Childhood Cancer Heroes

You are here

Zaniyah Culpepper

  • Diffuse Intrinsic Pontine Glioma (DIPG)

Click the images to see them larger above!

Learn more about
Diffuse Intrinsic Pontine Glioma (DIPG)

Get the facts about Diffuse Intrinsic Pontine Glioma (DIPG) and how our research projects are making a difference.

Learn More »

At 4 years old, Zaniyah already has a personality as strong as her spirit. Described as bright, independent and an all-around diva by her family, Zaniyah figures things out on her own and never asks for help. She loves pink, blue, dinosaurs, and playing with her twin sister Zariyah. 

During December 2021, Zaniyah was experiencing balance issues, and her eyes kept crossing. Concerned, her family took her to the pediatrician, which led to an MRI that revealed a mass on her brain. That same day Zaniyah and her family were sent to Children’s Healthcare of Atlanta, where they were told she had DIPG – a highly aggressive brain tumor that is currently incurable. 

Forgoing radiation, Zaniyah has tried herbal supplements, CBD oil and ZRadical for immune support. Zaniyah’s spirit remains strong, and today, she is still fighting with her doctor’s help. 

She is her father, Gary's hero because even though she is too young to know what DIPG is, she is still fighting, still happy, and having a great childhood. He only hopes that Zaniyah beats the odds and survives this condition.  

Gary also wants others who may be facing a childhood cancer diagnosis to know that the journey may be hard, but you must wipe your tears and get up and do something about it. “Please do not become stagnant,” he says. 

While Zaniyah and her family are new to the Alex’s Lemonade Stand Foundation family, they believe in the organization’s ability to not only help hero families financially, but to one day find a cure for cancers like DIPG. 

Hero quote: “I got an idea.” - Zaniyah 

Information provided by Gary, Zaniyah’s dad 
Updated March 2022 

Next Hero

Donate in Honor of Zaniyah Today!

Your donation helps to fund critically-needed research to find better treatments and cures for children with cancer.

Childhood Cancer Heroes

More Heroes

VIEW ALL HEROES
Jude is an imaginative and brave little boy. At less than a year old, he was diagnosed with retinoblastoma. He underwent many complications with his treatment and had to have one of his eyes removed. But today he is cancer-free!
Little Quinnlee is loving and adorable. She had an 11 cm tumor and kidney removed and is currently NED, but doctors are watching and waiting to make sure her cancer does not come back. At just 1 year old, she has shown enough bravery for a lifetime.
Joshua is intelligent and has many hobbies. He was diagnosed with Hodgkin lymphoma at age 17 after having random fevers and night sweats. After 6 months of treatment, he reached remission! He now wishes to go to medical school for oncology work.
Baby Jojo is a chatterbox who seemed as healthy as he is happy. But, that all changed when doctors found a malignant brain tumor. He is now going through cancer treatment, but is still the positive, courageous little boy he always was.
VIEW ALL HEROES