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Nicholas Capararo

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Nico was a completely normal kid until he was 8. In September of 2008, doctors discovered that he had a brain tumor in the nervous system. He had surgery on September 26. My mother was told that he had a slim chance of survival, most children died during the surgery or a couple of days later. But he made it. The surgery lasted 11 hours. He lived, but he wasn't the child he once was. He couldn't talk, walk, and we did not know if he was connected to the world at all. Then in October of 2008 he had another surgery to remove what was left of the tumor. This surgery lasted 7 hours. It was successful to a certain extent. Later in 2009 he underwent radiotherapy to kill any bad cells or prevent them from returning. Apart from the surgeries and the consequences mentioned above, he suffered other complications as well.

As of today, he has entered the Operating Room approximately 27 times. He suffered hydrocephalus and has a traqueostomy because he suffered from pneumonia. In the last year and a half, he has spent 13 months away from home in different hospitals in other cities. However, he has been home since December of 2009, and continues his rehabilitation process here. He still can't talk or walk but he stands up with our help and laughs. We all have faith that he will be able to live a fairly normal life, but we also know that it is a very long, painful and expensive process. I am sharing his story because I would like to get in contact with other people who have had the same experience. Maybe it will help other parents going through similar problems.  
Information Provided by María Antonela Capararo

Update, October 2012: Unfortunately, Nicolas passed away on October 12, 2012, due to complications with pneumonia.

 

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