Childhood Cancer

Childhood Cancer

Other service organizations (United States)

Alex’s Lemonade Stand Foundation (ALSF)

(610) 649-3034

www.alexslemonade.org

ALSF raises money to fund innovative research for better treatments and cures for pediatric cancer. It also offer financial assistance for travel to and from specific treatment centers, and a SuperSibs program providing emotional support to siblings of kids with cancer.

American Society for Deaf Children

www.deafchildren.org

This national information and support organization was founded and is governed by parents of deaf children.

American Speech-Language-Hearing Association (ASHA)

(800) 638-8255

www.asha.org

ASHA provides referrals to local speech/language/hearing specialists.

Amputee Coalition

(888) 267-5669

www.amputee-coalition.org

The Amputee Coalition empowers people affected by limb loss through education, advocacy, practical information, and mutual support.

Cancer Care

(800) 813-HOPE / (800) 813-4673

www.cancercare.org

Cancer Care provides referrals, one-on-one counseling, specialized support groups, and educational programs.

Chai Lifeline/Camp Simcha

(877) CHAI-LIFE / (877) 242-4543

www.chailifeline.org

Chai Lifeline offers support service programs for Jewish children and their families, including medical referrals, support groups, visits to hospitalized and housebound children, financial aid, transportation, and a camp for kids with cancer.

Children’s Organ Transplant Association (COTA)

(800) 366-2682

http://cota.org/learn-more

COTA provides fundraising assistance to families facing a life-saving organ, stem cell, or bone marrow transplant. Funds raised in a COTA campaign can be used for any expenses related to the transplant.

Flashes of Hope

(440) 442-9700

www.flashesofhope.org

This organization matches professional photographers with families to create powerful, uplifting photographic portraits of children fighting cancer and other life-threatening illnesses.

Gabe’s Chemo Duck Program

www.chemoduck.org

This unique educational program offers a Chemo Duck to children with cancer. This soft, cuddly companion provides huggable hope and alleviates fear and anxiety. Developed with the help of child life specialists and medical professionals, the Chemo Duck Program helps introduce children and families to their new life and encourages healing through the power of play therapy.

Hearing Loss Association of America

www.hearingloss.org

This organization provides education, advocacy, and direct support for individuals with hearing loss. It hosts an online parent-to-parent community for parents of children with hearing loss and has a network of state and local chapters.

Monkey in My Chair

(513) 772-4888

www.monkeyinmychair.org

Monkey in My Chair provides a child with cancer a “monkey kit” that includes a big stuffed monkey that takes their place in school when they are unable to be there. The kit contains a book to help teachers explain childhood cancer and its treatment to classmates to help them gain insight and empathy.

National Association for Parents of Children with Visual Impairments

(800) 562-6265

www.familyconnect.org

This association maintains a national support network via telephone and mail correspondence; provides publications, information, referrals, conferences, outreach programs; and publishes a quarterly newsletter.

National Center for Complementary and Alternative Medicine (NCCAM)

(888) 644-6226

http://nccam.nih.gov

NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training researchers, and disseminating authoritative information.

National Organization of Parents of Blind Children

(410) 659-9314

http://nopbc.org

This division of the National Federation of the Blind connects parents to peer support and provides information and resources.

Physician Data Query (PDQ)

(800) 4-CANCER / (800) 422-6237

www.cancer.gov/publications/pdq/information-summaries/pediatric-treatment

PDQ is the National Cancer Institute’s computerized listing of accurate and up-to-date information for patients and health professionals about cancer treatments, research studies, and clinical trials.

Ronald McDonald House Charities (RMC)

(630) 623-7048

http://rmhc.org

RMC is committed to helping families of seriously ill children by providing Ronald McDonald Houses, the Ronald McDonald Learning Program, and Ronald McDonald Family Rooms within hospitals.

Songs of Love Foundation

(800) 960-SONG / (800) 960-7664

www.songsoflove.org

This volunteer group has more than 200 artists who produce personalized musical portraits for children with chronic or life-threatening diseases.