ALSF Infant and Childhood Brain Tumor Report Statistical Supplement 2014

There are thousands of children diagnosed with cancer every year, the breadth of which is difficult to catalog. Even collecting just the data from one type of cancer, like brain tumors, is a massive undertaking. That was the goal of this partnership between Alex’s Lemonade Stand Foundation and the Central Brain Tumor Registry of the United States (CBTRUS) when developing their 2014 statistical supplement. The compendium collects data from all primary brain and other central nervous system (CNS) tumors diagnosed in the United States from 2007-2011. CBTRUS is the only population-based site-specific registry in the US that works in partnership with a public cancer surveillance organization, the Center for Disease Control’s (CDC) National Program of Cancer Registries (NPCR).

The report compiles a plethora of detailed breakdowns regarding the data for pediatric brain and CNS cancers. That includes items like location of tumor, types of tumor, incidence rates by age groups, histology, gender, mortality and survival rates plus many more informative details for 99.8% of children affected in the United States during that 5-year time frame. Since its publication, the work has been cited more than 100 times by fellow researchers. That it remains such a commonly cited publication is a testament to the usefulness of these data for pediatric cancer clinicians and researchers everywhere. ALSF’s goal was to provide a dedicated tool to help drive research for novel treatments for children facing brain tumors across the world. Since brain and other CNS tumors are the most common cancer and most common cause of cancer death in children from birth to 14-years-old, this report remains a vital resource for researchers across the country.

Email us at [email protected] to request a copy of the CBTRUS and be sure to include your mailing address.