As the Alex’s Lemonade Stand Foundation (ALSF) Director of Science, I work to evaluate our funded research projects to track progress and find gaps in funding so that we can direct more research dollars to the largest areas of need, and... more
All blog posts tagged with "Spinal Cord Tumor - Astrocytoma"
March 4, 2020
When Lilly faced surgery after relapsing, her family made the decision to donate extra tumor tissue to research instead of throwing it away.
“We hope that Lilly’s... more
September 12, 2019
Every day, everywhere, children are diagnosed with cancer. Right now, children are in hospitals receiving frontline treatment following a diagnosis. Other children are beginning a clinical trial following a relapse. Still others face... more
August 21, 2019
For my four long years of high school, I woke up at 5:30 every morning to go to swim practice and then stayed up late nearly every night to finish my chemistry homework. I desperately wanted to get into my dream school, the University... more
July 3, 2019
Last year, we shared the story of 14-year-old Eden Green, who loves to take photos and dance. Eden was in treatment for a form of childhood cancer so rare, that doctors did not have a clinical name for it. After 4 months of... more
June 10, 2019
When my daughter Kennedy was born, like all new dads, I vowed to always be there for her and protect her.
But when Kennedy was 2 years old and diagnosed with cancer, I realized that I couldn’t live up to part of that pledge. I... more
December 17, 2018
by Trish Adkins
For Eden, the trouble began when she was 10 years old. The trouble had a name: pain. It seemed normal at first—maybe a side effect from dancing or growing. But then it never went away and then, suddenly... more
December 14, 2018
Children with certain types of hard-to-treat childhood cancers just got another huge dose of hope. Last week, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a drug called... more
December 3, 2018
by Adam Paris
Eden is a 13 year old who loves to shoot photos and smile for her own snapshots. After being unable to walk or practice her favorite activity, dancing, for nearly a year, she was... more
November 29, 2018
by Trish Adkins
In September, Alex’s Lemonade Stand Foundation (ALSF) called over 90 top scientists, pediatric oncologists and researchers from around the world to gather in Philadelphia to discuss the big question:... more
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