The Childhood Cancer Blog
The Childhood Cancer Blog
Childhood cancer research is made possible through the work of ALSF supporters and donors who have turned cups of lemonade into nearly 1,000 research grants.
Dr. Jeffrey Huo, an ALSF grantee, explains how research happens beginning with cups of lemonade and moving through the research process.
ALSF founder Alex Scott had a simple idea that turned into a huge legacy. During the 2019 Lemonade Days, supporters hosted over 2,500 lemonade stands in 49 states
“The purpose of research is the generation of new knowledge. If research is kept private and placed in a drawer then it is useless,” said Dr. Adolfo Ferrando of Columbia University, who published his research about a mutation that drives the relapse of acute lymphoblastic leukemia (ALL) in the January 2018 edition of Nature. “By publishing, we give the clinical community the opportunity to use the published knowledge.”
“Once upon a time, there was a very brave and generous girl named Alex and she decided she wanted to help kids with cancer. And thousands of you helped her do it,” begins Alex’s Lemonade Stand Foundation (ALSF) grantee Dr. Jeffrey Huo in his talk about how cups of lemonade are leading to cures for childhood cancer.
Watch Dr. Huo explain how cups can lead to cures:
All year long, childhood cancer advocates and ALSF supporters work to raise funds for childhood cancer research.
Whether it is hosting a lemonade stand during ... Read More
Edie, pictured above with mom Emily, celebrated her 10th birthday on June 7.
Emily and Edie Gilger, together with their oncologist Dr. Yael Mossé, shared their story at the ALSF Lemon Ball in January 2019.
Edie and her mother Emily battled the same ALK-driven neuroblastoma.
My husband, Nick always tells people that without Alex’s Lemonade Stand Foundation (ALSF) and without the research you support, he would not have a family. And it’s true. My daughter Edie, me, my son Kinsey—none of us would be here if it weren’t for ALSF.
My daughter, Edie, was born June 7, 2009 in Lynchburg, Virginia.
When Edie was six months old, she was diagnosed with Stage 4 neuroblastoma. She had two tumors growing out of each adrenal gland crossing over her mid-section and invading her pancreas, kidneys,... Read More
The CCDL team regularly trains pediatric oncology researchers on how to use refine.bio to accelerate the pace of their research.
The CCDL Team (from L to R): Casey Greene, Candace Savonen, Kurt Wheeler, Ariel Rodriguez Romero, Deepa Prasad
refine.bio brings together decades of data sets for childhood cancer researchers to download and use for their own research.
The Childhood Cancer Data Lab (CCDL) started with what seemed like a simple mission: develop tools to help pediatric oncology researchers access data, easily and quickly, in order to speed the work towards cures.
Of course, creating those tools is anything but simple.
Take refine.bio, the CCDL’s online repository of childhood cancer data. This tool took several decades' worth of publicly available childhood cancer data, all written in different languages, translated it, and placed it all in one... Read More
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