The Childhood Cancer Blog
The Childhood Cancer Blog
“When I met Dr. Dubois, that is when my life changed,” said Sonia. She began a new treatment, but then her cancer returned, again, this time in her big toe. Sonia began a new trial, one funded, in part, by ALSF, for a targeted drug used in combination with chemotherapy.
Madelyn was just 12 years old when she was diagnosed with childhood cancer
When Brynn relapsed with ependymoma, her family was told to simply enjoy the holidays.
When Jude was diagnosed with retinoblastoma at 9 months old, doctors said they had caught his cancer early
Ailani was 2 years old when she was diagnosed with leukemia that had a rare, hard-to-treat mutation.
Sonia was just 11 years old when she started coughing. The cough was relentless; worried their daughter had pneumonia, Sonia’s parents took her to the emergency room.
Sonia didn’t have pneumonia; but the scans revealed a more ominous reading: tumors in both of her lungs. Those tumors were metastasized Ewing sarcoma, a type of bone cancer, with only a 15-30% five-year survival rate when it is found in the lungs at diagnosis.
Sonia spent one month in the ICU, endured surgery after surgery, and chemotherapy. Treatment seemed to work, but then two years after her diagnosis,... Read More
What does childhood cancer awareness mean to me? It means giving back to the community that has kept me alive.
At the age of 12, I was diagnosed with a chronic blood cancer called myeloproliferative neoplasms (MPN). I presented with a blood clot, causing my liver to fail, and I needed a liver transplant as well as oral chemotherapy to control my disease for the next seven years. A few years ago, ALSF-funded researcher, Dr. Linda Resar, was able to switch my treatment from chemotherapy to a new targeted therapy for my specific MPN mutation.
My treatment plan moving forward... Read More
As the year comes to close, many of us are searching for meaningful ways to give back and help those in need. This year, you can join the movement to find safer treatments and cures for childhood cancer with Alex’s Lemonade Stand Foundation (ALSF). Since 2005, ALSF has funded more than 1,500 research grants. It is an amazing accomplishment, made possible by supporters everywhere.
But, there is still more work to be done. Cancer remains the leading cause of death by disease for children in the United States. In... Read More
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