The Childhood Cancer Blog
The Childhood Cancer Blog
When Dr. Yang Ding was a student at the University of Pennsylvania’s Perelman School of Medicine, Dr. John Maris gave her class a lecture on neuroblastoma and then introduced a pair of unexpected guest speakers: Liz and Jay Scott, the parents of Alex’s Lemonade Stand Foundation (ALSF) founder Alex Scott.
She recalls the day she learned about ALSF very clearly: “I remember hearing about Alex's story and how she was just really spunky and then turned the lemonade stand into this really amazing, long-lasting foundation to find cures for kids like her. That was really impressive.” ... Read More
Bernadette, age 5, second generation retinoblastoma warrior
Nate, age 7, third generation retinoblastoma warrior
James, age 10 months, first generation retinoblastoma warrior
If you’ve never heard of retinoblastoma, you’re not alone. It’s a rare disease among rare diseases, with fewer than 300 kids diagnosed in the United States each year. In 2017, one of those kids was my daughter, Bernadette.
She was diagnosed early, on her second day in this world. We knew to look for retinoblastoma because her father was diagnosed with it in 1984 at 13 months old. A genetic test 30 years later confirmed our suspicion that his case of retinoblastoma was hereditary. Fast forward to today, Bernadette is 5 years old, obsessed with mermaids and cancer-free. We are... Read More
Matteo was just six months old when childhood cancer entered his life.
His parents, Kim and Alfred, were already aware of childhood cancer. Al’s employer was a sponsor of Alex’s Lemonade Stand Foundation (ALSF). The night before Matteo was diagnosed, Kim had stayed up late baking cookies for a fundraiser at his office.
"Never in a million years did I think my kid would have cancer,” said Kim, “We knew about childhood cancer. But we did not think it would be us.”
Childhood cancer is devastating.
Matteo was diagnosed with a pediatric kidney cancer called... Read More
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