The Childhood Cancer Blog
The Childhood Cancer Blog
Ailani has relapsed seven times. “Chemo didn’t work for her. Bone marrow transplants, those didn’t work for her. The only thing we’ve had to rely on is clinical trials,” said Princecine, her mom.
Throughout her experience, Ailani has had several photoshoots with Flashes of Hope, a program of ALSF, that show Ailani as she’s grown from a very sick little girl to the vibrant, 8-year-old she is now. Some of the photos were taken during uncertain, scary times – but resulted in beautiful markers of Ailani’s journey. Credit: FOH/ALSF by Erica Kavadias
An inspiring way to kick off the giving season, Giving Tuesday is a global charity movement, a worldwide day of giving, and one of the most important chances of the year to help kids with cancer through ALSF.
“We refuse to give up until we’ve exhausted every treatment, flipped over every stone,” said Kurt, Ailani’s dad.
“I want them to get better medicine for kids,” said Ailani, who has sung “Fight Song” at a variety of childhood cancer awareness events.
If you hang around 8-year-old Ailani long enough, you might hear her humming one song or another, maybe Fight Song, which she’s performed on stage at several childhood cancer awareness events. You might catch her playing with one of her many dolls, prepping her babies for the day or the night. Ailani likes to talk, too.
When we interviewed Ailani and her parents, Kurt and Princecine, a few weeks ago, she left partway through the interview to play, but made sure to let us know that she wanted to come back before we finished.
“Let me know when you say goodbye,” she sang... Read More
When Sam and Katie found out that their 9-month-old son had cancer, a happy ending felt like the farthest thing from reality.
It was 2019 when the couple took their son, Jude, for a routine checkup. Everything seemed to be going well until the pediatrician noticed a strange glint in Jude’s eye. Having worked as a child life specialist in the field of pediatric oncology for 8 years, Katie feared for the worst when they referred him to a pediatric ophthalmologist.
It took two scans for the ophthalmologist to confirm Katie’s worst fear–Jude had a small tumor in his retina.... Read More
Hosting a lemonade stand through Alex’s Lemonade Stand Foundation (ALSF) is a wonderful and charitable way to help all kids with cancer. Wondering how to make your lemonade stand more sustainable and environmentally friendly? There are plenty of ways to keep stands inexpensive and fun while keeping things eco-friendly! We’ve got some great tips on how you can make your lemonade stand not just yellow, but green, too!
1. Compost your lemon rinds
If you like your lemonade freshly squeezed, this tip is... Read More
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