The Childhood Cancer Blog

The Childhood Cancer Blog

Welcome to The Childhood Cancer Blog
from Alex's Lemonade Stand Foundation!

Alex’s Lemonade Stand Foundation (ALSF) presents The Virtual Childhood Cancer Lecture Series to educate cancer researchers and advocates about recent developments in childhood cancer research and treatment. 

Presented by leaders in the field, this can’t miss round up of lectures is a great way to connect, collaborate and continue to build a childhood cancer knowledge base that can be applied to the lab, the clinic and in advocacy work. 

All lectures will be recorded. But, live participants can ask... Read More

  • Lakelynn was 3 years old when she was diagnosed with a rare sarcoma. Now, Lakelynn is 6 years old and her tumor is stable.
    Lakelynn was 3 years old when she was diagnosed with a rare sarcoma. Now, Lakelynn is 6 years old and her tumor is stable.
  • Edie was just 6 months old when she was diagnosed with neuroblastoma. Today, Edie is celebrating her 11th birthday, cancer-free.
    Edie was just 6 months old when she was diagnosed with neuroblastoma. Today, Edie is celebrating her 11th birthday, cancer-free.
  • Zach was 5 years old when he battled a rare form of anaplastic large cell lymphoma. Zach is now 15 years old and cancer-free.
    Zach was 5 years old when he battled a rare form of anaplastic large cell lymphoma. Zach is now 15 years old and cancer-free.
  • Taylor was 11 years old when osteosarcoma entered her life. Today, Taylor is 25 years old, cancer-free and celebrating her 1st year of marriage
    Taylor was 11 years old when osteosarcoma entered her life. Today, Taylor is 25 years old, cancer-free and celebrating her 1st year of marriage
  • Eden was 10 years old when doctors discovered a cancer so rare it had no name. Today, Eden is 15 years old and that rare cancer is gone.
    Eden was 10 years old when doctors discovered a cancer so rare it had no name. Today, Eden is 15 years old and that rare cancer is gone.

When Lakelynn was first diagnosed with a rare tumor, her family was given no options for treatment. Then genomic testing revealed that Lakelynn’s tumor harbored an NTRK gene fusion. Within 48 hours of learning more about Lakelynn’s diagnosis, the family headed to Boston to see Alex’s Lemonade Stand Foundation (ALSF)-funded researcher Dr. Steven Dubois.

Dr. Dubois was leading a trial for a drug called larotrectinib, which showed promise for kids like Lakelynn, who were battling cancer with the NTRK fusion. The trial worked. Lakelynn’s tumor shrunk and remains stable. Now, Lakelynn... Read More

During May, we honor Brain Tumor Awareness Month, to raise awareness of childhood brain tumors and the significant need for more research that will lead to new, safer cures.   Brain and Central Nervous System (CNS) tumors are the leading cause of death for children with cancer in the United States, overtaking childhood leukemia in 2016. While leukemia has seen an increase in survival rates over the last several decades due to improved treatments, brain tumors lag behind with fewer innovative treatments. 

Decades have gone by without changes in treatment plans or outcomes in some... Read More

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