The Childhood Cancer Blog
The Childhood Cancer Blog
ALSF funded-researcher, Dr. Ted Johnson, shares his work at an ALSF research summit.
Brynn was just 3 years old when her brain tumor relapsed
After Brynn relapsed with a brain tumor and had her second brain surgery, her parents were told to enjoy the holidays. Brynn was just 3 years old. But Brynn’s mom, Jessica, remembered a trial parents were talking about in a Facebook group for ependymoma, the type of tumor that Brynn had.
“They just said to go and enjoy Christmas, but we were like, ‘Absolutely not,;” said Jessica, Brynn’s mom. The trial she heard about was for an immunotherapy drug, led by Dr. Ted Johnson, an Alex’s Lemoande Stand Foundation-funded... Read More
What does childhood cancer awareness mean to me? It means giving back to the community that has kept me alive.
At the age of 12, I was diagnosed with a chronic blood cancer called myeloproliferative neoplasms (MPN). I presented with a blood clot, causing my liver to fail, and I needed a liver transplant as well as oral chemotherapy to control my disease for the next seven years. A few years ago, ALSF-funded researcher, Dr. Linda Resar, was able to switch my treatment from chemotherapy to a new targeted therapy for my specific MPN mutation.
My treatment plan moving forward... Read More
Alex’s Lemonade Stand Foundation (ALSF) has always believed investing in futures – whether that means helping kids get the treatment they need or funding researchers to keep expanding the field of pediatric cancer research. The Pediatric Oncology Student Training (POST) Program was designed for undergraduate, graduate, and medical students to experience the field firsthand under the guidance of an experienced research mentor.
POST grantees from across the country conduct original research alongside their mentors at several accredited institutions. In 2024, 47 students were awarded... Read More
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