The Childhood Cancer Blog
The Childhood Cancer Blog
Edie was just 5 months old when she began experiencing stomach pain. Her parents knew something wasn’t right and after a series of tests, Edie was diagnosed with stage 4 neuroblastoma. By the time she was 2 years old, Edie had been fighting neuroblastoma for over half her life and treatment wasn’t working.
Her cancer persisted. Out of options, Edie went to Children’s Hospital of Philadelphia (CHOP), an Alex’s Lemonade Stand Foundation (ALSF) Center of Excellence.
CHOP doctors tested Edie’s blood and found she was harboring a specific mutation called anaplastic lymphoma... Read More
Leevi was diagnosed at age 2 with ependymoma and relapsed at age 5. After frontline treatment failed, Leevi enrolled in a clinical trial.
Oncology researcher Dr. Meenaskshi Hegde, from Texas Children’s Hospital, is working to change the outcome for kids facing ependymoma and to ensure that treatments are available at several institutions.
Using Alex's Lemonade Stand Foundation (ALSF) Center of Excellence (COE) grant funding, Dr. Hegde is leading a Phase 1 study of CAR T cells for patients with refractory or relapsed ependymoma. The study, which opened in early 2022 at three children’s hospitals, will give patients access to treatment... Read More
Jaxson's nurse made sure his Halloween in the hospital was special and memorable
Claire battled Ewing sarcoma. Her mom recalls that all the nurses took good care of both Claire and her family.
Tony's nurse Amanda bonded with him while Tony was in a coma. Later, she'd make the trip to his Eagle Scout ceremony.
Nurses play a critical role in the lives of children facing cancer. Beyond their medical expertise supporting treatment, managing medications and answering family questions, pediatric oncology nurses also fill a critical comfort and care role for families. This emotional support is so important to parents, affected children and siblings when life is at its most uncertain.
These are nurses that families need. Here are the five things you should know about pediatric oncology nurses:
1. They know when you need a hug.
When Claire was in treatment for Ewing sarcoma... Read More
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