Childhood Cancer

You are here

Home » Type » Beckwith-Wiedemann Syndrome

Beckwith-Wiedemann Syndrome

Beckwith-Wiedemann syndrome is a congenital growth disorder that cause large body size, large organs and other symptoms. It can increase a child's risk of certain childhood cancers including Wilms’ tumor and hepatoblastoma.

Resources for Families

Make an Impact on Beckwith-Wiedemann Syndrome - Donate now!

Latest Beckwith-Wiedemann Syndrome grants

Cancer Risk and Incidence in Beckwith-Wiedemann Syndrome
Jennifer Kalish, MD/PhD, Principal Investigator
Children’s Hospital of Philadelphia
Epidemiology Grants, Awarded 2019
Dissecting the Mechanism of Overgrowth and Tumorigenesis in Beckwith-Wiedemann Syndrome
Jennifer Kalish, MD, PhD, Principal Investigator
University of Pennsylvania
Young Investigator Grants, Awarded 2013

Beckwith-Wiedemann Syndrome Heroes

Emma Boelk

Latest Beckwith-Wiedemann Syndrome blog posts

Discovering More Ways to Identify Kids with Beckwith-Wiedemann Syndrome
The National Institutes of Health define rare diseases as conditions that affect fewer than 200,000 people. But for families facing one of these diseases, like Beckwith-Wiedemann Syndrome (BWS), these diagnoses don’t feel rare. BWS affects... more
Quarterly Childhood Cancer Research Update: Spring 2021
As the Alex’s Lemonade Stand Foundation (ALSF) Director of Science, I work to evaluate our funded research projects to track progress and find gaps in funding so that we can direct more research dollars to the largest areas of need, and to... more
How Tissue Donation is Helping Childhood Cancer Research
When Lilly faced surgery after relapsing, her family made the decision to donate extra tumor tissue to research instead of throwing it away. 

“We hope that Lilly’s neuroblastoma tumor can be some small part of helping other children who... more
more blog posts

All childhood cancer types

Predisposition

Childhood Cancer Guides

Childhood Cancer Guides - Covers

Books that help families of children with cancer, reviewed by renowned experts in pediatric oncology

Learn more

Featured Hero

Kensleigh Williams

Despite the difficulties she has faced because of cancer, baby Kens is always smiling. She was diagnosed with a glioma before she was even 7 months old and is starting the chemotherapy she will have to take for the rest of her life unless a cure is found!
Read more »